♪ PODCAST: The Role of Medical Affairs in Rare Diseases with Tom Pulles @ Ultragenyx
Today's podcast is with Tom Pulles, Head of Medical Affairs & Patient Advocacy at Ultragenyx. Tom offers key advice for medical affairs in the rare disease space: the importance of listening to the patient's voice via face-to-face interactions, considerations around setting up disease monitoring programs where patient recruitment is low, and meaningful patient outcomes. Enjoy!